Patient leaflets EuroGentest has developed a series of 15 leaflets to provide general information for patients and families about genetics and genetic testing. Can either be downloaded and printed out, or you can look at the information online by choosing the HTML version. Select your language (more than 30 languages are available!): • • • • • • • • • • • • • • • • • • • • • • • • • • • • • • • • • NEWThe Council of Europe has developed a general leaflet on Genetic Tests for Health Purposes with the support of Eurogentest and the European Society of Human Genetics (click ). Two new leaflets have been created on non-invasive prenatal testing (NIPT): One generic leaflet () and one more specific (). Direct-to-consumer genetic testing When a test is offered to patients through a private company instead of health care providers, this test is called a direct-to-consumer test (DTC). Although this makes genetic testing available for a broad audience, one must be aware of the risks and limitations of these tests when offered outside of health care.

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Click for more information on DTC. NEWEuroGentest developed a simple tool for clinicians that will help them to understand and advise patients about the many issues inherent in the use of such services (click. Individuals considering using a DTC test may also find this tool useful.

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